Gestational Trophoblastic Disease (GTD) is a rare condition that can be life-changing for patients and requires highly specialised care. Because it affects only a small number of women each year, services are centralised, and patients often face long journeys and fragmented communication with their clinical teams. Capturing the true impact of GTD on quality of life can be difficult in routine clinics, and without consistent assessment tools, important concerns may be missed.
ePAQ-GTD is a validated, digital patient-reported outcome measure (PROM) designed specifically for women diagnosed with Gestational Trophoblastic Disease (GTD).
Developed with specialist centres, it enhances communication between patients and clinicians, supports virtual clinics, and provides a reliable Holistic Needs Assessment that can be embedded into routine care. By enabling patients to share their experiences in their own words and at their own pace, ePAQ-GTD ensures both physical and emotional needs are addressed, improving care quality and consistency.
It's development is underpinned by extensive academic research, including a landmark Lancet Oncology review (2018), and it stands as one of the first validated digital PROMs for this rare condition, setting a new standard for holistic, patient-centred follow-up.
The Benefits
For Patients
and Families
Share sensitive concerns privately, at home or in clinic, using plain language
Feel listened to and better supported through a rare and often complex diagnosis
More personalised care planning that addresses both physical and emotional needs
Improved continuity of care, even at distance, through use in virtual clinics
For
Clinicians
Structured, validated PROM data to inform specialist consultations
Consistent assessments across the GTD patient population
Supports meaningful discussions that go beyond clinical metrics
Enhances efficiency in virtual and face-to-face follow-up clinics
For Health Systems
Provides a standardised, evidence-based tool for a rare condition
Improves efficiency by reducing unnecessary face-to-face visits
Enhances patient experience and outcomes
Contributes valuable PROM data for audit, service evaluation, and research